Tuesday, February 5
Abstract
Codes of ethics exist for most professional associations with members who do research on, for, or with the Sign Language communities. However, these ethical codes are silent regarding the need to frame research ethics from a cultural standpoint, an issue of particular salience for the Sign Language communities. Scholars writing from the perspective of feminists, indigenous peoples, and human rights advocates have commonly expressed dissatisfaction with the lack of representation of their voices in the conversation about research ethics. Members of Sign Language communities and their advocates can learn from others who share in this struggle, as well as contribute much to this topic. We propose the development of Sign Language Communities Terms of Reference (SLCTR) as a means to research by, for, and with the Sign Language communities.
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1 comment:
I really liked the SLS article on research ethics. I teach a doctoral class on research design and I think it might make our reading list. I also have served on our IRB board at U of Colorado - Boulder for about 8 years.
Honestly, our IRB board DOES consider cultural issues all the time. We insist on letters of support from individuals who know the community. We require translations and check translations. We question procedures that do not fit local communities. We reject studies that assume homogenous values within communities. I know not all IRB boards are like this but many are.
Our IRB board is not just scientists. We have several community representatives, who often bring a consumer perspective.
If no one at the table can address a cultural concern, we table approval until we can talk to a member of that community to see if concerns are valid.
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